Jackson’s tests for Celiac came back positive. We have started his Gluten-Free diet. I had Will tested, and he is negative. I am also going to get tested, as it can be is genetic. We have some huge adjustments, I got Jackson a little book so he starts to understand why he has a new diet.“Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate a protein called gluten, found in wheat, rye, and barley. Gluten is found mainly in foods but may also be found in products we use every day, such as stamp and envelope adhesive, medicines, and vitamins.”
Tags: Celiac disease, gluten-free
December 23, 2007 at 11:06 pm
Saw your entry on my tag surfer. My 4yo(tomorrow) was diagnosed a little over 2 years ago. It certainly is an adjustment. There are a lot of good resources on the Internet though. At a blog called “Gluten Free Mommy” they have menu Mondays where people post their GF menus for the week. If you follow over to the various blogs you can find all sorts of recipes and resources.
I wish you good luck with your changes. It can be frustrating at first but you’ll get the hang of it over time until it almost feels “normal.”
December 30, 2007 at 8:48 am
My husband is undiagnosed but suspected Celiac. He is on the Specific Carbohydrate Diet in preference to Gluten Free. Most people haven’t heard of SCD, but he is 62 years old and his diarrhea vanished literally from Day ONE, on this diet. There are considerable differences between this and Gluten Free (SCD is more strict, and more work) but one of the main reasons we opted for SCD is that there is a very good chance of a permanent cure. i.e. after one year – sometimes a little longer – you can go back to eating normal foods again. I can’t help but feel, especially in the case of children, that one year of very strict might beat a lifelong Gluten Free prospect. You may like to read the book (available on Amazon I think) Breaking the Vicious Cycle by Elaine Gottschall.
January 5, 2008 at 7:21 am
Wow. That’s a rough adjustment! One of my niece’s had two children diagnosed with Asperger’s, and when she moved to a gluten-free diet, the symptoms virtually disappeared. The adjustment was rough though.
Good luck to you. It’s definitely worth it.
January 5, 2008 at 7:33 am
He is adjusting quite well, he understands that he cannot eat wheat, and he is adapting to his “special” food. I have to stay organized as most health food stores are about an hour away from me.